nobism Ubiqum Cluster headache Project

Managed by:

Rogier Koning, Sara Marín, Daniel Castejón
Ubiqum Code Academy

nobism Ubiqum Cluster headache Project

Managed by:

Rogier Koning, Sara Marín, Daniel Castejón
Ubiqum Code Academy

About nobism Ubiqum Cluster headache Project

The nobism & Ubiqum project is setup to create a visualization and analysis of the data we collect as Cluster headache patients using the nobism app connected to OpenHumans.

Goal: This project is setup to do our own research as patients with the data we can collect about our personal disease progression.

Data will be used to create a report. This report will exist out of 2 parts:

• a part with a personal visualization of the data shared by the user
• a part where we visualize trends and patterns based on all the data shared by the Cluster headache community.

Here we will try to answer the questions, we have as patients, about our attacks and the effectiveness of our treatments.

This is a “Live” project where we will try and add extra information to the report every month. By connecting and interacting with the Cluster headache community, we hope to get all the questions the students can use to work on the work on the report will be done by final students.

• Info
• Data

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Permissions & added data

Requested permissions:

Data Selfies
nobism
nobism Ubiqum Cluster headache Project

Uploaded data:

We want to create regular reports based on your own data and that of all that shared. These will be stored back into your OpenHumans account

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Projects & studies

You can use & share your data from nobism Ubiqum Cluster headache Project with the following other projects:

nobism reports for Advocating

nobism Ubiqum Cluster headache Project

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Recent Members

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Project information

Managed by:

Rogier Koning, Sara Marín, Daniel Castejón
Ubiqum Code Academy

Joined by: 74 members

Public data: shared by 1 members

Launched: June 21, 2019

Project website: https://nobism.com/

Contact email: info@nobism.com

Project terms: View terms

nobism Ubiqum Cluster headache Project: terms

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This project is 100% patient driven

Your input:

We expect users to collect data about their cluster headache attacks and treatments to be able to create a personal report. You could be contacted for questions.

Data you will share:

By joining this project, all data collected in the nobism-app and stored on OpenHumans, will be shared with Ubiqum Code Academy anonymously. If you have older nobism-data stored in the Data selfie project, then this data will also be shared.

What will you get back:

regular reports based on your own data and that of all that shared. These will be stored back into your OpenHumans account

Who will use the data:

Ubiqum Code academy and the student working on this project will have access to the data to work on the report. No data will be shared with any third parties

If you want to stop sharing:

If you end sharing with this project, no new data will be shared. Data already shared will stay available in the project

More information: https://nobism.com/ubiqum/

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Requested permissions:

Data Selfies
nobism
nobism Ubiqum Cluster headache Project

Uploaded data:

We want to create regular reports based on your own data and that of all that shared. These will be stored back into your OpenHumans account

Your Data

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